Real voices. Real journeys.

Stories of resilience, advocacy, and hope from Kenyan patients, families, and the wider PAK community.

Storytelling and patient community moments

Why stories matter

Stories are powerful. They break stigma, empower patients, and help communities understand that psoriasis is more than a skin condition.

  • Representation: Through the People of Colour campaign, PAK showed the world how psoriasis appears on darker skin tones and why visibility matters.
  • Empowerment: Sharing lived experiences helps patients speak openly, advocate for better care, and inspire others.
  • Education: Policymakers, doctors, and families learn from real voices, not just medical definitions.
  • Solidarity: Global campaigns connect Kenyan patients to a wider movement for equity and dignity.
PAK members in a storytelling and awareness moment

Patient voices

Patient storytelling and BBC style feature visual
Featured story

Nyawira Munyiri - Psoriasis Association of Kenya

"Psoriasis spread to 96% of my body. For years, I felt isolated. Through PAK, I found community and hope and now my story is part of a global conversation."

  • Nyawira has lived with psoriasis for over 20 years, facing stigma and misdiagnosis.
  • Her testimony was featured in a BBC programme highlighting how psoriasis looks different on darker skin tones.
  • She advocates for visibility, equity, and dignity for patients of colour.
  • Her story connects local Kenyan experiences to global campaigns like People of Colour.
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Campaign highlights

PAK's campaigns bring psoriatic disease out of the shadows, from community talks in Kenya to global solidarity initiatives.

Outreach
  • Media campaigns on radio, TV, and social media amplify patient voices nationwide.
  • Domino Effect 2025 showed how psoriasis triggers a chain reaction of physical, mental, and social challenges.
  • Kenyan patient testimonies highlighted the African experience in global advocacy spaces.
Global partnerships
  • Dr. Hoseah Waweru Solidarity Fund (IFPA).
  • PsorAfrica Alliance.
  • GlobalSkin Impact Fund.
  • People of Colour campaign.

Member meetings and support

Beyond campaigns, PAK provides direct support to members so patients and caregivers feel connected and empowered.

Monthly member meetings

Patients gather to discuss treatment challenges, stigma, and coping strategies.

Guest speakers

Dermatologists, psychologists, and advocacy leaders bring expertise into community spaces.

Peer support circles

Small group sessions offer safe spaces to talk about flare-ups, mental health, and family life.

Social media and WhatsApp

Active WhatsApp groups connect patients across Kenya for daily tips, encouragement, and treatment updates.

Community connection

Meetings often link to larger campaigns such as World Psoriasis Day, keeping advocacy alive between events.